SKILLS
June 26, 2023

How to Advocate for Yourself: A Guide

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Living with Crohn's disease as a student can be challenging, but it's important to remember that you have rights. Advocating for yourself and understanding these rights can make a significant difference in your academic experience. Here's how you can stand up for yourself and ensure your needs are met.

Understand Your Rights:

As a student with a chronic illness, you have certain rights under the law. The Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act of 1973 protect students with disabilities, including those with chronic illnesses like Crohn's disease, from discrimination. Newer laws like the Restroom Access Act (also known as Ally’s Law) are being passed in states across the US to guarantee access to employee-only bathrooms for people with certain medical conditions including Crohn’s. These laws ensure that you have equal access to education and can receive reasonable accommodations.

Request Accommodations:

If you need accommodations to manage your academic responsibilities, don't hesitate to request them. This could include extended time for assignments and exams, permission to leave class for bathroom breaks, or the ability to record lectures. Speak with your school's disability services office to understand the process and what documentation you may need.

Communicate Openly:

Be open about your condition with your professors and advisors. They can't support you if they don't know what you're going through. You don't have to share every detail, but letting them know you have a chronic illness that may affect your academic performance can be helpful.

Document Your Condition:

Keep a record of your diagnosis, symptoms, and any flare-ups. This documentation can be useful when requesting accommodations or if you need to appeal a decision.

Know Where to Go for Help:

Familiarize yourself with the resources available to you, both on and off-campus. This could include your school's disability services office, counseling center, health center, and off-campus resources like local support groups or national organizations like the Crohn's & Colitis Foundation.

Practice Self-Care:

Advocating for yourself also means taking care of your physical and mental health. Eat a balanced diet, get regular exercise, ensure you get enough sleep, and manage stress. Remember, it's okay to take breaks and prioritize your health.

Seek Support:

You don't have to navigate this journey alone. Reach out to friends, family, or support groups. They can provide emotional support, practical advice, and a sense of community. Project Crohn's is dedicated to connecting young adults with support groups of mentors, counselors, and financial counselors. Connect with a support group today!

Advocating for yourself as a student with Crohn's disease is crucial. Understanding your rights, communicating your needs, and seeking support can help ensure you have a positive and successful academic experience. Remember, you are not defined by your illness, and with the right support and accommodations, you can thrive in your academic journey.